I'm excited to share this video because it concisely explores what all I have learned to focus on in regards to managing symptoms, and improving my quality of life. Also! I share a new treatment I'm testing out, based on recent research for spg-7.

If this helped you, or you learned something- let me know in the comments. As always feel free to share your own experience. The more we share, the more we can learn and hopefully find more relief!

Also a special shoutout to the commenter @N1TRO who asked this question as well as to Donna who shared this fascinating research with me.

I'm incredibly grateful for how far I've come in regards to symptom management!! NEVER GIVE UP!!

HSP Treatment plan Timestamps:

9:00 - Mitochondrial condition… homeostasis is important!

9:35 - Homeostasis…. SLEEP

9:53 - first bullet point: FOOD and food sensitivities

16:03 - second bullet point: Blood sugar balancing

21:55 - third bullet point Exercise and Pacing

23:09 -*** accidentally trigger a muscle spasm

28:00 - fourth bullet point Allergy management

29:13 - (* added bullet point: Hormone fluctuations

30:42 - sixth bullet point: Stress Reduction

31:11 - seventh bullet point: Decompression Physical Therapy

32:30 - Aquatic Therapy (briefly tried it)

35:05 - Newest treatment I am trying (a supplement)

47:58 - all listed out, and Baclofen

For more information about HSPs and spastic paraplegia type 7, visit:
- https://sp-foundation.org/
- https://hspersunite.org.au/
- https://www.ncbi.nlm.nih.gov/books/NBK1107/
- https://medlineplus.gov/genetics/condition/spastic-paraplegia-type-7/

and consider joining the Facebook support groups that exist:

1. Spastic Paraplegia Foundation:
- https://www.facebook.com/groups/12339208066
2. HSP-7 support group:
- https://www.facebook.com/groups/2478425735714938
3. another hsp group
- https://www.facebook.com/groups/125580470865793
4. CURE spg-7 group
- https://www.facebook.com/groups/821875531777703/

My other videos about HSP:
My Eye Symptoms with SPG-7:
- https://youtu.be/Onz2PGyT9LI?si=pUZMQbA8kRYCaw90
Just diagnosed:
- https://youtu.be/YehgxrxnHmE?si=rJf8SMz0Fls7ffTQ


#neurologicalcondition #neurologicalcare #neurologicalhealth #fnd #braintumor #musclespasms