This video was recorded at our 2026 AGM.
Renae Stefanetti from Newcastle university talks about physical activity in HSP.

00:58 Agenda/aims
02:15 Physical activity is not a cure, but....
02:35 Difference between exercise and physical activity
05:12 Why is physical activity important
07:46 Potential benefits for people with HSP
10:26 What is the point if I cannot stop my HSP?
11:47 Overcoming barriers to physical activity in HSP
13:46 Balancing physical activity and fatigue
16:04 What types of activity might help
19:08 Activity guidelines
21:37 Aids can help you stay active
23:14 How to adapt activities to make them work
27:05 Making physical activity work for you
29:50 Measuring physical activity in research
32:22 Pilot study understanding physical activity in HSP
34:18 Take home messages
35:27 Useful resources