UK HSP Support Group 2026: Overview of HSP, Clinical features, Management and Clinical research
リアクション
2026年08月08日
This video was recorded at our 2026 AGM.
Yi Ng from Newcastle university gives an overview of HSP, common approaches to management, and talks about clinical research into HSP.
01:03 Agenda
01:40 Overview of relevant parts of the nervous system
02:27 How muscles are affected by HSP
03:47 Muscle weakness
04:14 HSP plus (complex HSP) affects about 10%
05:14 Clinical management of HSP
05:48 Medication options
07:05 Physiotherapy
08:33 Occupational therapy
09:29 Orthotics
10:27 Neurogenic bladder
14:02 Prevalence of HSP
16:01 Understanding the effects of the different genes
17:30 Spastic Paraplegia Rating Scale
18:25 Differences between 'pure' and 'complex' progression
20:04 Which symptoms are most/least talked about in clinic
21:28 HSP quality of life scale
23:03 Ways of measuring HSP impact
24:32 HSP patient journey
26:02 Gene therapy/Medication development
Yi Ng from Newcastle university gives an overview of HSP, common approaches to management, and talks about clinical research into HSP.
01:03 Agenda
01:40 Overview of relevant parts of the nervous system
02:27 How muscles are affected by HSP
03:47 Muscle weakness
04:14 HSP plus (complex HSP) affects about 10%
05:14 Clinical management of HSP
05:48 Medication options
07:05 Physiotherapy
08:33 Occupational therapy
09:29 Orthotics
10:27 Neurogenic bladder
14:02 Prevalence of HSP
16:01 Understanding the effects of the different genes
17:30 Spastic Paraplegia Rating Scale
18:25 Differences between 'pure' and 'complex' progression
20:04 Which symptoms are most/least talked about in clinic
21:28 HSP quality of life scale
23:03 Ways of measuring HSP impact
24:32 HSP patient journey
26:02 Gene therapy/Medication development
